Never heard
of Childhood
Dementia?

You’re not alone. Childhood dementia exists – but people often haven’t heard of the disease, which is normally associated with adults.¹

Parents and families affected by childhood dementia are robbed of many joys of everyday life with their children, and witnessing their child’s rapid decline is extremely distressing for parents and family members.

Several different groups of neurological diseases cause dementia in children.² There is little research into the prevalence of all of these different forms of childhood dementia in the UK, so the total number of children affected by these diseases remains an estimate.

The Dementia Strikes Children Too campaign aims to raise awareness of childhood dementia, drive for better clinical education of this group of diseases, and put in place the systems and tools for earlier diagnosis.

This community-driven campaign has been co-developed by many families, and three patient support organisations, with the support of biopharmaceutical company BioMarin, in order to help share the stories of real children living with this group of diseases.

YOU CAN LISTEN TO THEIR STORIES HERE.

In a recent survey by YouGov, only 4% of MPs said they were familiar with childhood dementia as a disease.¹

To create real change, the Dementia Strikes Children Too campaign is attempting to reach as many people as possible in the UK. We need your help!

You can do this by tweeting your own MP about childhood dementia, and calling for them to support the campaign by visiting this website, learning more and getting involved in campaign activity. You can find your local MP’s Twitter handle using the ‘Tweet Your MP’ webtool.

TWEET YOUR MP BY CLICKING HERE.

You can find out how else you can help the Dementia Strikes Children Too campaign on the What Can I Do page.

WATCH THE INTRO VIDEO AGAIN HERE.

References

YouGov, MP Survey, January 2018. Data on file.
A. Kohlschutter et al (2016) Pediatric Endocrinology Reviews 13(1):2016.

Never heard of Childhood Dementia?

You’re not alone. Childhood dementia exists – but people often haven’t heard of the disease, which is normally associated with adults.1

In a recent survey by YouGov, only 4% of MPs said they were familiar with childhood dementia as a disease.1

References

Job code: EU/CLN2/0298. Date of preparation: March 2018

Never heard
of Childhood
Dementia?

You’re not alone. Childhood dementia exists – but people often haven’t heard of the disease, which is normally associated with adults.¹

In a recent survey by YouGov, only 4% of MPs said they were familiar with childhood dementia as a disease.¹